Showing posts with label ROCK Highlights. Show all posts
Showing posts with label ROCK Highlights. Show all posts

Friday, November 30, 2012

Dr. Drew, you owe the celiac community and Jennifer Esposito a BIG apology!


Today's post actually is being shared with permission of Nikki Everett and her daughter Erin. Please make sure to read through the end of the post and then visit the change.org site to help 11 year old Erin ask Dr. Drew for a well deserved apology to the celiac community. 

To see Nikki's original article about this issue please visit her Charlotte, NC ROCK gluten-free support group website


Nikki & her daughter Erin
Hi Everyone,

If you have not seen the interview with Dr. Drew and Jennifer Esposito which took place 11/27/12, it has caused quite a stir in the community. The misinformation and total mishandling of celiac disease and leaky gut syndrome, not to mention Jennifer Esposito's claims of illnesses, was unacceptable.

Erin, my daughter, was so angry from watching it, she has written the following to send to Dr. Drew's show:

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Dear Dr. Drew,

Hi, I am an 11 year old girl that watched your show and hope to help you with your knowledge of celiac disease. First of all, not everyone has diarrhea, there is also constipation with celiac disease. They have to take your blood in tests or an endoscopy to diagnose celiac. Celiac disease is not a disorder it is a disease. When you called it only a disorder, that hurt my feelings because I am a celiac and I know what its like. It seemed like you have no clue what other kids and families go through when they find out they have it.

I was sick for many years but no one knew what was wrong. We went to doctor after doctor. They tried to tell me it was all in my head! On Halloween night, when I was seven years old and I went trick or treating,
I came home and was so sick to my stomach. I was throwing up all night long with my mom by my side. That same week I went to the doctors because I wouldn't eat anything and lost four pounds. My doctor did the same thing you did - example; "I think she has constipation nothing more, that would solve the hurting of the stomach." It kept on getting worse. My mom demanded that they do an endoscopy. They did and found out
I had Celiac Disease.

Mom started a R.O.C.K group. It stands for Raising Our Celiac Kids. One time when the kids and I were at one of our meetings, another girl came up to mom and said that she hadn't ever been able to eat a cake at a party in years. All the mothers were tearing up and mom felt joy in her heart. You see, we face people not believing our disease is as serious as it is all the time.

Please take the time to learn more about celiac disease and gluten free living, so you don't make anyone else as sad as your show made me. We need people like you to educate others and spread awareness about this horrible illness. No one should feel ashamed of this disease.

Thank you for reading!

Sincerely,
Erin R. Everett


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We will be sending it in today and ask that you help us by signing and sharing the petition we have made on Change.org
http://www.change.org/petitions/dr-drew-show-on-headline-news-we-would-like-a-public-apology-to-the-celiac-disease-community

Let's stand together and let mainstream media know that they cannot discount the seriousness of this disease because so many still suffer needlessly
and struggle to get diagnosis.

Thank you,
Nikki Everett

Director of Event Coordination
ECHO Event Solutions
Gluten Sensitivity Seminars, LLC
Founder ROCK (Raising Our Celiac Kids), Charlotte, N.C.

Please take a look at our GF/AF Expo Press page to see
what kind of exposure our vendors and presenters get from participating
in our events at www.gfexpopress.blogspot.com/
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Saturday, May 19, 2012

R.O.C.K. Highlights: How To Be A Gluten Free Kid

Designed by Jennifer Yandle

A few months ago Shirley of Gluten Free Easily started sharing online reports about each meeting of her local gluten free support group. I thought it might be a neat idea to do something similar here on my blog. I think it will be an interesting contrast to see the different topics and ideas shared at another type of gluten free support group.

I started my local gluten free support group in January 2010. It took six months for me to have the courage and enough people to put together a meeting, but we did it! We had 6 people at our first meeting and that included myself, my husband, and my fearless mother-in-law! Our first meeting focused on local gluten free resources and restaurants who could cater to a gluten free diet. We began having monthly meetings and eventually added what we call "coffee breaks" several times a month. The coffee breaks were more informal times just to get together and chat, have coffee, and talk about all things gluten free in our area.

As the group has morphed and changed over the past two years we now have bi-monthly meetings and once-a-month coffee breaks. We now have about 25 active members who come to our meetings and over 45 members we connect with locally through email and facebook. Recently our group became affiliated with Danna Korn's R.O.C.K. (raising our celiac kids) support group. I chose for our group to join this organization over other national groups because the premise of the group 1) is to have a positive attitude towards being gluten free! Life is good! And even though being gluten free can be a challenge, it doesn't have to be a sad or negative experience! I love Danna's philosophy on this!

Secondly, this organization will meet the needs of many in our area who are raising gluten free kids! I felt there was a primary need for us to make sure that kids felt included and welcomed in our gluten free support group!

"Mommy, What is Celiac Disease" by Katie Chalmers

The focus of our ROCK Party last Saturday was How to Be a Gluten Free Kid! We really felt like we needed an introductory meeting to truly welcome parents and kids into our local group since we became a ROCK group. This meeting was simple and straightforward. Two members of our group Erin P. and Nancy C. helped me to plan out this meeting. We decided to have games out for children, have a local face painter to paint faces and hands (she kindly volunteered to come and help us for free!), and have lots of delicious gluten free food and snacks for the kids.

Barrett's Unusual Ice Cream Party By Michelle King

To begin the meeting I just shared new announcements, introduced myself, and then welcomed people to try all the delicious gluten free foods we had available.

The focus of the meeting was the reading of two children's books: "Mommy, What is Celiac Disease" by Katie Chalmers and "Barrett's Unusual Ice-Cream Party" by Michelle King.

After reading the stories to the children (and parents) in our group we spoke with author Katie Chalmers through a SKYPE interview. Mrs. Chalmers answered questions for our parents especially regarding how to handle kids being gluten free in school and how to inform other parents and teachers. She shared with us why she wrote the book, lunches she made for her children, how she handled going out to eat etc...She was a delightful person to speak with!

The rest of our meeting was a laid back question and answer session among the adults of the group, while the children played with balloons, games, and enjoyed the gluten free food that was shared.

GF Grilled chicken nuggets from Chick Fil A

Erin P. asked our local Harris Teeter (a grocery store which sells many gluten free foods for us!) to donate helium-filled balloons for our kids. Nancy C. & her husband Merle spoke with a manager at our local Chick Fil A, who volunteered to send a huge tray of gluten-free grilled chicken nuggets to our group. (Many, MANY thanks to our local Chick Fil A! We love you guys! We often meet at our local Chick Fil A for our monthly coffee breaks because the kids can play and we can all eat safe gluten free grilled chicken, waffle fries (dedicated fryer!), fruit, and salads!)

Gluten Free KIND Snack Bars! YUM!

Primarily for the blog, I was contacted by KIND Snacks, Inc. and Gallo Lea Organics of Asheville NC if I would like to try samples of their gluten free food. We shared these foods with our group and they were a HUGE hit!

We were sent 4 different varieties of the KIND bars to try, along with a cute giveaway package that included KIND gluten free granola and different varieties of the bars! We used this as a door prize for parents! KIND Healthy Snacks was founded in 2003 and all of their bar varieties are gluten free! They contain all natural ingredients that you can actually see in each bar and can easily pronounce! The philosophy of the KIND Snacks company is that they choose healthy, tasty, convenient, wholesome, economically sustainable, and socially impactful products to share with consumers.

These bars were a hit with the kids and adults of our group. We gave away tons of samples of the bars and included them in goody bags that we gave to our kids.

Gluten Free Homemade Pizza Kits from Gallo Lea Organics -- Great for your pantry!

Gallo Lea Organics out of Asheville, NC (love working with local companies!) sent us 3 pizza kits to use at our gluten free support group! I went to the church early (where we meet) to make the pizzas before the meeting. I didn't realize how FAST and easy these pizzas would be to make! It literally good less than 30 minutes to put these pizzas together and bake them! The mix uses all natural gluten free ingredients with whole grains, NO gums, yeast, salt, and citrus acid (vitamin C) to help preserve it. All you do is mix the dry ingredients with warm water, pat out onto a pan lined with the parchment paper (that's included in the kit) and bake. You prebake the crust for about 5-10 minutes and then add toppings (the sauce is included!) and bake for another 5-8 minutes until the toppings are heated through. That's it! Safe, delicious, gluten free pizza is served in less than 30 minutes! I made one pizza with regular cheese, one with cheese & gluten free pepporoni, and one with daiya vegan cheese (I had to eat pizza too! lol).

Seriously easy to make and our group really loved the flavor of the crust! One member mentioned that he thought it tasted similarly to a "whole wheat" pizza crust. All the kids ate the pizza and loved it! I'll never forget the reaction of one of our newest members, a young boy with a wheat allergy. When it was time to eat he came up to the food table and I told him he could eat ANYTHING and EVERYTHING on the table. His little face just lit up with sheer delight that there were no restrictions at this table! It was a wonderful moment I'll never forget! We had absolutely NO pizza leftovers! All the ingredients are organic and you can purchase the mix directly from Gallo Lea's website.

Michael's Favorite (Gluten Free & Dairy Free) Chocolate Chip Cookies

Several of our members made gluten-free snacks to share with everyone! I made my husband's favorite chocolate chip cookies. Erin P. made gluten free cake pops using my gluten free yellow cake mix. She put them on lollypop sticks, covered them in melted white chocolate and sprinkles and placed them decoratively in a pink basket! Super cute! Nancy C. made her favorite chex snack mix and gluten free banana bread. I also brought fresh fruit (apples & grapes) to remind kids about naturally gluten free, super healthy food choices!

Here are the recipes Nancy used that she shared with our group: 



In place of flour, Nancy uses her own gluten free flour mix for the flour in this recipe:
2 cups white rice flour + 1 cup sorghum flour + 1/3 cup tapioca starch/flour
Then add 2 teaspoons xanthan gum and you're all set. 

My husband Michael made goody bags for all the kids. He placed a KIND bar in each bag along with popular gluten free candies such as Tootsie Rolls, Starburst, and Jolly Ranchers.

This turned out to be one of my favorite gluten free support group meetings we've ever had! We had both children and adults really having fun, laughing, enjoying gluten free pizza and grilled nuggets. Sharing stories, talking, and just feeling good about being gluten free! And honestly, I think that's what a support group is all about! Our ROCK party in July will hopefully be a gluten free cookout at a local ballpark. I'll be sure to share all the details with you about how we put that together and how well it goes!

MANY, MANY thanks to the vendors and children's book authors who provided their products and materials for our May ROCK Party! We had a great time and loved these products!



GLG Disclosure: 
The companies and authors listed in the above post provided samples of their products and books for the purpose of providing a review, if I chose to do so
This is not a sponsored post and I did not receive compensation. 
The opinions in this post are my own and those of my local gluten free support group. 


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